Saturday, July 11, 2009

Bone scan and head staples

Seth had a bone density test a couple weeks ago-it showed he has osteopenia, which means his bones are weak, but it's not as advanced as osteoporosis. It's measured by a z-score, and his was -1.5, so they're not super fragile or anything, but still something we'll have to keep an eye on. Especially once he starts the deflazacort, because that can cause osteoporosis as well. Dr. Chadehumbe already did some blood work on his vitamin D levels, I haven't yet seen what the results of that were, but I'm sure she'll be putting him on some supplements to help his bones. Then she has his levels checked and bone scans done periodically, too. A lot of DMD boys have bone weakness-in fact, I was talking to a mom last week, and that's how her son was diagnosed-he kept breaking bones, which led to the eventual diagnosis.

As for the head staples...I wasn't there (and Chappie wasn't in the room) so we're just going on what Seth has told us, but he was at physical therapy and she was having him do some activity that involved him standing on a balance board and then they had to do something with a ball on a string and they each had some thing they had to open and close, so she wasn't standing right next to him and he lost his balance and fell back and hit the back 0f his head on a table. He went to the ER and they put 5 staples in it. That was a little traumatic, but it's not bothering him at all now, and he'll be able to get them out in ten days. I asked him if he wanted to see them and he said no.

I understand accidents happen, but how could she not know the kid doesn't have good balance? If you did five minutes of research on the disease, especially if you wanted to know how that would affect how you treated him, you would know that these kids don't have great balance. You would think you would want to practice on the balance board a few times rather than leaving him on it alone at his third session. PLUS, nobody called from that office to see how he was doing, or apologize, or anything. I know that they can just go on the hospital system and see what they ended up doing at the ER, but somebody still should have called. Don't you think? Are they so worried about a lawsuit that the PT can't even call and say she's sorry? Heaven forbid anybody take the blame for anything.

2 comments:

Alexis said...

That shouldn't have happened at PT. :( The PT shouldn't have left him alone.

Leslie said...

How horrible!!! Like he needs to go through that! Poor kid!!! And they totally should have called...how rude!