Here's a link to a news story about a family in Grand Rapids, the Friars, whose two little boys have DMD. I have talked to this mom a couple times. http://www.fox17online.com/videobeta/watch/?watch=9168ed45-a43a-4b78-8e47-cd6f480fcb08&src=front
We were going to meet her and the kids tomorrow because we were supposed to have a genetics appointment and then later in the day a neuro appointment, but those are both on hold because the blood work isn't done yet. We're just waiting on the genetic test that are being done at Emory University-she said it could be 3-4 more weeks on top of the 4 weeks it's been already. I guess they wait for a bunch of them to come in so they can do them all at once or something? It's frustrating, but 3 more weeks won't be too terrible.
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